Prader-Willi Syndrome

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by Cindiluho
Last updated 8 years ago


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Prader-Willi Syndrome

Prader-Willi Syndrome

People born with PWS will never live independently in an unsupervised-setting, should remain in school until age 21. Placed in a class based on their intellectual function. Will need consistent daily and weekly schedules. The limited transitions will help maintain behavioral control and allows extra time for learning academics and self-help skills. Prevocational skills are implemented in high school for transition to adult vocational and transitional supported employment opportunities but should Not include food-related work.

PWS is caused by the absence of certain paternally inherited genes on the long arm of chromosome 15, resulting in a complete absence of the active copy of genetic information in this region.

PWS is Commonly known for food-related characteristics of hyperphagia, food-seeking behaviors, obesity, growth deficiency, hypotonia,learning disability, delayed and incomplete development in puberty

The PWSA-NE is a chapter of the National PWSA. A parent organization that provides support, education, and information on Prader-Willi Syndrome

PWSA of NE: Services include Leisure and Social ProgramsYouth/Adult Athletic ProgramsCross Cultural Communications

Support ProgramsArc of Greater PlymouthCordage Commerce CenterPlymouth, MA508-732-9292

Prader-Willi Syndrome Assn.of New England Inc.Foxborough, MA 508-698-3740 or web address

PWS is known to be one of the most common microdeletion syndromes.

Community Resources for Prader-Willi Syndrome


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