Prader-Willi Syndrome

In Glogpedia

by Cindiluho
Last updated 5 years ago

Discipline:
Science
Subject:
Genetics

Toggle fullscreen Print glog
Prader-Willi Syndrome

Prader-Willi Syndrome

People born with PWS will never live independently in an unsupervised-setting, should remain in school until age 21. Placed in a class based on their intellectual function. Will need consistent daily and weekly schedules. The limited transitions will help maintain behavioral control and allows extra time for learning academics and self-help skills. Prevocational skills are implemented in high school for transition to adult vocational and transitional supported employment opportunities but should Not include food-related work.

PWS is caused by the absence of certain paternally inherited genes on the long arm of chromosome 15, resulting in a complete absence of the active copy of genetic information in this region.

PWS is Commonly known for food-related characteristics of hyperphagia, food-seeking behaviors, obesity, growth deficiency, hypotonia,learning disability, delayed and incomplete development in puberty

The PWSA-NE is a chapter of the National PWSA. A parent organization that provides support, education, and information on Prader-Willi Syndrome

PWSA of NE: Services include Leisure and Social ProgramsYouth/Adult Athletic ProgramsCross Cultural Communications

Support ProgramsArc of Greater PlymouthCordage Commerce CenterPlymouth, MA508-732-9292 http://www.thearcofgp.com/index/htm

Prader-Willi Syndrome Assn.of New England Inc.Foxborough, MA 508-698-3740 or web addresshttp://www.pwsausa.org

PWS is known to be one of the most common microdeletion syndromes.

http://rarediseasesnetwork.epi.usf.edu/arpwsc/

Community Resources for Prader-Willi Syndrome


Comments

    There are no comments for this Glog.