[2014] Alyssa Waters: Marfan Syndrome

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[2014] Alyssa Waters: Marfan Syndrome

Marfan Syndrome

Marfan syndrome usually is inherited. This means it’s passed from parents to children through genes.

Marfan syndrome affects about 1 in 5,000 people in the United States

Marfan syndrome can weaken blood vessels and tissue around the heart and stretch and weaken the walls of the aorta. This can cause the aorta to tear or burst (called aortic dissection), which can be life-threatening. It can also cause eye, bone and lungs problems.

Marfan syndrome has no cure. However, treatments can help delay or prevent complications, especially when started early.Marfan syndrome can affect many parts of your body, including your heart, bones and joints, eyes, nervous system, and lungs. The type of treatment you receive will depend on your signs and symptoms.

For children with Marfan Syndrome, depending on how serious the birth defect is, there are several things that can be done to help including: Heart, bone and joint, eye, nervous system and lung treatments also surgery.

Alyssa Waters 12/21/15All Information from March of Dimes

How many children are affected by this birth defect?

What effect does it have on the child?

What can be done, if anything, to cure or help the child?

Marfan syndrome is a condition that weakens the body’s connective tissue.

How is the birth defect caused?


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